Parents Fear Losing Support for Disabled Children: The Impact of SEND Reforms in England (2026)

A heart-wrenching dilemma faces parents of disabled children in England, as they grapple with the potential loss of vital support due to upcoming reforms in special needs education. This issue has sparked a wave of concern and anxiety among parents, as highlighted by a recent survey conducted by the disability charity Sense.

The survey, which polled 1,000 parents of children with multiple complex needs, revealed that half of the participants expressed nervousness about the impending reforms. A significant 45% of parents fear that their children's support will be withdrawn during the changes.

Bridget Phillipson, the Education Secretary, is currently finalizing the reforms, which are expected to be published in mid-February as part of a schools white paper. The reforms aim to overhaul England's special education needs and disabilities (Send) provision, focusing on how schools and local authorities fund and provide support for children with additional needs.

But here's where it gets controversial... The future of Education, Health, and Care Plans (EHCPs) is a key concern. These legal agreements between parents and local authorities detail the support provided, backed by appeals to a dedicated Send tribunal. However, the Sense survey found that one in five parents reported their child's school failing to deliver the legally required support outlined in their EHCP. Nearly half of the parents described the process of securing Send support as incredibly stressful.

James Watson-O'Neill, the chief executive of Sense, emphasized the dire situation, stating, "A shocking number of children are being failed by a baffling and underfunded Send system. Too many are falling through the cracks, at the cost of their happiness, well-being, and future life chances."

And this is the part most people miss... The impact of these reforms extends beyond the educational sphere. A third of the surveyed parents revealed they had to leave their jobs due to inadequate support, while 40% had to reduce their working hours for the same reason. This highlights the broader implications of the Send system's failures on families' livelihoods and well-being.

The Department for Education (DfE) has recently completed a national listening exercise, gathering insights from parents, school leaders, and interest groups ahead of the white paper's completion. A DfE spokesperson commented, "Our reforms will restore parents' trust by fixing what isn't working in the system. We're ending the postcode lottery by strengthening support for those who need it and protecting parents' rights."

The schools white paper will outline the government's plans to expand special needs provision in mainstream state schools, allowing more children with special needs to attend local schools instead of competing for limited and costly special school places.

However, Sense has called on ministers to ensure that the needs of disabled children with complex needs are fully addressed as part of the reforms. They have warned that without "robust legal rights" and adequate funding, disabled children risk being left further behind.

As the debate surrounding these reforms intensifies, it is crucial to consider the voices of those directly affected. What are your thoughts on this matter? Do you believe the government's reforms will address the concerns raised by parents and disability charities? Feel free to share your opinions and insights in the comments below!

Parents Fear Losing Support for Disabled Children: The Impact of SEND Reforms in England (2026)

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